Thursday, November 14, 2013

Bringing You Up To Speed

So many things have happened its unreal and I'm not sure where to start!

First of all, DS5 had a 24hr EEG.  NEGATIVE for seizure activity!! Woohoo!!  However, because of that he's being referred to Pulmonology to check his heart/lung function.  Why does he stop breathing?  Why does his nose and mouth turn blue when he's playing vigorously?   He had a 2nd sleep study.  POSITIVE for sleep apnea STILL.  Even after surgery.  Our options are a dental device, nasal surgery, a combo of both or CPAP. Well,  I'm going with CPAP.  That's the one thing that I know for sure will work.  Especially after my DS13 getting a diagnosis of Ehler-Danlos, type III( hypermobility).  After speaking to the geneticist about that, I find out I have a text book case that's gone undiagnosed my whole life.  GREAT!  But at least I know NOW what it is.  The likelihood of DS5 and DD11 having this is crazy high. Especially considering their loose joints and scoliosis.  This is probably the cause of DS5's sleep apnea and it could be affecting his heart.  
So...now what? I've gotten a bit depressed... between all that medical mumbo-jumbo and now DS13 and DD11's Dad suddenly wants to take them for the whole Christmas break.  I'm very happy for them getting to spend time with their dad.  They've not seen him in a year and a half, but still. I'm already sad knowing how quiet and sad our Christmas is going to be now. Oh well... I have Thanksgiving, right?  

And yeah.. Thanksgiving is going to be at my house this year!  I'm hoping that will help cheer me up.  And speaking of Thanksgiving... The kids asked to go to Disney for Thanksgiving next year... YAY!  That's our favorite time to visit.  BUT.. if I take them to Disney next year, then that's another Christmas they get to spend with their Dad.  Not sure I can handle back to back empty Christmases. So... We are going to push that trip out til Springtime and go for my birthday/Star Wars weekend!  Whoop!  A time we've never gone.  Not looking forward to the heat, but a birthday trip for a family of Star Wars geeks will be awesome none the less!!!

Other than that, I'm busy cleaning and painting... painting and cleaning... Taking things off to recycling, goodwill, and the dump.  I've GOT to get this pile of boxes left over from my previously life GONE! Too much and I need to seriously get to decluttering.

Ok.. I think that sums it up.  Tonight we'll be posting a recipe that my DS13 LOVES to make and we love to eat!!  Also, I'll be putting up new items on my Peanut Sprouts link.  

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